Friday, March 6, 2009

Weekly Update 03/06/2009

Zachary no longer has to wear any dressings on his wound as it is closed up completely. It's not pretty, but he is glad he can take a shower without having to keep it covered up. We did not have any dr appointments this week but I cannot say that it has been quiet or returned to normal..... after all, "What is normal?"

I have returned to work three days a week, much to Zachary's chagrin. He does not like it when I leave him. We have different people to come in and sit with him while I am gone or until the other kids get home from school.

As you may have already determined, Zachary is quite tenacious and he does not take being limited by any situation easily. This week we have taken him out for rides in the car instead of the van that has the wheelchair lift. This has given him the opportunity to ride up front and confront some of his fears about being in the car. It has also put it in his head that if he can get in the passenger seat without any problem he should be able to get in the driver's seat without any problem as well. I came home from work last night and he announce to me that he was going to Wal-Mart. When I realized that he meant that he was going to drive. Yeah.....no way Zach!!!! It took a very long conversation to convince him that it was not going to happen

Next week we have his follow-up with his surgeons. He will find out how much longer he has to have his ileostomy. That has probably been the most humiliating and frustrating part of all of this. He handles it well but when he and I are alone he often comments on how much he hates it. We also follow up with his orthopedic surgeon to find out if he can start weight bearing activity and start his physical therapy. So we will have to wait and see.

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